Josiah has been off the ventilator all day long and is doing okay. He is still on continuous Albuterol, but they are trying to evaluate him in regard to just doing a treatment every hour or two instead of continuously. He is feeling well enough to complain about how bad he feels. He still hasn't had anything to eat, which he thinks is cruel and unusual punishment, but I talked with the nutritionist today, and she was preparing a menu for him. Hopefully, they will let him eat tomorrow morning. I really feel for him. Everything is still a day by day, hour by hour situation as far as how long he will be in, and all that stuff. There are no certainties right now.
He felt good enough to sit up and watch Winnie the Pooh, and color in his new coloring book from Grandma for a while, but he still gets tired easily. They let him get out of bed and sit in a chair for a while today, and I was able to hold him on my lap for a time. It was a real feat to arrange all the tubes, wires, and monitors in such a way that we could both be comfortable. He has to take some anti acid to keep his stomach juices from giving him problems since he doesn't have any food for them to digest. Tonight they had to give it to him by mouth instead of putting it directly into his stomach through the tube. He didn't like the taste, and spit it out. We finally bribed him with some water, and he drank the rest of it. He told me he doesn't like feeling bad. He really is doing so much better. Please keep praying.
Sarah
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